Study Steering Committee
The Study Steering Committee meets twice a year and provides overall supervision for the project on behalf of the Project Sponsor and Project Funder. They ensure that the project is conducted to the rigorous standards set out in the Department of Health’s Research Governance Framework for Health and Social Care and the Guidelines for Good Clinical Practice.
The day-to-day management of the project is the responsibility of the Chief Investigator.
Study Steering Committee Members
Chair: Kath Evans, Head of Patient Experience – Maternity, Newborn, Children and Young People, NHS England
Janet Cobb, Foundation for People with Learning Disability
Prof. Peter Fleming, University of Bristol & University Hospitals Bristol
Prof. Margaret Fletcher
Michelle Johnson, Barts Health
Nick Meade, Genetic Alliance
Prof. Sue Read, Keele University
Dr Lorna Wales, The Children’s Trust, Tadworth
Andrea White, Great Ormond Street Hospital
Core Research Team Members
Dr Kate Oulton, Chief Investigator
Prof. Faith Gibson, Co-Investigator
Dr Charlotte Kenten, Research Fellow & Project Manager
Executive Team Members
Dr Mark Whiting, Co-Investigator
Parents Advisory Group Representatives
Two members from the Pay More Attention Parents Advisory Group will be invited to attend each Study Steering Committee meeting, of whom one will represent the views of parents with a child with a learning disability.